Monthly Archives: September 2015

Camp Del Corazon

I would like to show you something that is one of the most important things in my life.

Camp del Corazon – “On the Island” from D. Russell on Vimeo.

Camp Del Corazon is a summer camp for children with congenital heart disease (CHD) on Catalina Island. Every year for the past 21 years, kids with heart disease have been attending this summer camp. The counselors at camp spend come from all walks of life: Doctors, nurses, medics, teachers, waiters, actors, musicians, you name it. Many counselors, like me, also suffer from congenital heart disease, some of which attended camp as campers and are now all grown up.

Camp is fully funded by donations and fundraising campaigns. EVERY CHILD that attends camp, goes for FREE, thanks to generous donations. At CDC, campers learn that they are strong, and capable of doing anything. They become confident despite their condition, and discover courage and friendship.

Please consider donating to Camp Del Corazon HERE.

This was my second year volunteering for Camp Del Corazon. Last year, I volunteered as a counselor only 5 months after my 2nd open heart surgery. Camp gave me a sense of belonging, just as it does for the children. I immediately became part of something bigger; a family of people who care. At camp, there are only good people. It is impossible to fully articulate how amazing and important Camp Del Corazon is, for so many children with CHDs.

If there is a place in your heart for a person who grew up with Congenital Heart Disease… If you suffer from heart disease… If you know someone who has a child with CHD… Please watch the short video below to peer inside camp and discover how truly important it is. Then, please consider donating to Camp Del Corazon HERE.

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Super silly at the rockwall

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yes, me in a Giraffe costume, walking the highline.

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The view from camp

Tell-Tale Heart

I was originally inspired to blog about my heart valve replacement journey by a woman my age who did the same thing about 2 years before my surgery. Her blog is: https://defectiveheartgirlproblems.wordpress.com/

lisasrival6I was so excited to hear that she appeared on my favorite podcast, Radiolab. In the episode she describes her aortic valve replacement, which was very similar to my procedure. She also describes a sensation that she experiences that I also experience! Every heart beat can be felt strongly in my chest. Not only is the clicking audible, but the beating is audible too. The energy from each beat is also transferred to my upper skeletal system. If you put your hand on my shoulder, you can feel my heart beat.

Summer describes this sensation, and how it affected her mentally and emotionally. I know exactly how she feels. I had he same reactions as her, and came to grips with it in a similar way. It was very emotional to hear this story.

If you are a valve patient, or soon to be, PLEASE listen to this story. 

Follow this link to stream the story from Radiolab’s website:

http://www.radiolab.org/story/radiolab-live-telltale-hearts-featuring-oliver-sacks/

Cheers!